By National Research Council, Policy and Global Affairs, Technology, and Law Panel Science

ISBN-10: 030908329X

ISBN-13: 9780309083294

ISBN-10: 0309508398

ISBN-13: 9780309508391

Within the years because the Shelby modification, scientists, undefined, and coverage makers have struggled over how the public’s new correct of entry could be utilized to medical facts. there's unfastened contract that examine info can be available, yet extensive confrontation over the “depth” to which the general public has any such correct. The nationwide Academies’ technological know-how, expertise, and legislation software held a workshop to discover the mounting tensions within the federal regulatory strategy among the necessity to supply entry to investigate facts and the necessity to shield the integrity of the learn strategy. The workshop supplied an image of the controversy bobbing up from passage of the Shelby modification and the ensuing OMB revisions of round A-110. This record is a precis of the workshop.

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Extra resources for Access to Research Data in the 21st Century (The compass series)

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C. Mr. David E. C. Ms. Wanda V. Brownlee William J. C. Dr. William J. Brownlee, III William J. C. Ms. Nancy S. C. Dr. Joe S. D. C. Dr. David R. Challoner Professor and Vice President for Health Affairs Emeritus Institute for Health Policy and Epidemiology University of Florida Gainesville, Fla. Mr. Christopher W. S. C. 41 APPENDIX C Mr. Frederick J. C. Dr. E. C. Mr. David P. Clarke Senior Director Regulatory Reinvention & Legal Reform American Chemistry Council Arlington, Va. Ms. Camille M. C. Mr.

Kramer, is the focal point for medically based assessments of medical practices and state of the science. ” The panel is asked to form an independent judgment based on available evidence. This report is not vetted by the NIH and stands as an independent report. 24 ACCESS TO RESEARCH DATA IN THE 21ST CENTURY The issue for a conference must meet several criteria: it must have public health importance; affect or broadly apply to a significant number of people; reflect a gap between current knowledge and practice; and draw primarily on available scientific information.

But the challenge of resolving sciencebased questions may call for a more active judicial role. 12 The speaker suggested that judges may have the potential to seek fairer solutions than the federal agencies, which are subject to many constraints and rigidities. 12See NRC, The Age of Expert Testimony: Science in the Courtroom, 2002. 5 Alternative Approaches to Data Access In the interest of investigating ways to provide greater access to research data, the workshop invited representatives of various organizations to describe several alternative approaches.

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Access to Research Data in the 21st Century (The compass series) by National Research Council, Policy and Global Affairs, Technology, and Law Panel Science

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